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March 2010 Update!
02/03/10
March 2010 Update!
Hi everyone, Im soo sorry yet again that the update on Lilly has taken me so long, but it has been pretty hectic with Lilly since i last updated you on her health etc, at the end of last year she was in and out of hospital with chest infection and chest infection and breathing problems, and then in December she was so ill she was admitted to the high dependency unit and was on hourly nebulisers, enhalers, oxygen and antibiotics, thankfully she was home in time for christmas but is now on permanent antibiotics as her white blood cells and pneumococcal levels are too low which explains her low immune system.
We also found out just before christmas that Lilly has pvl brain damage and scarring to the brain which has devastated us beyond belief.
Then last month we were told she has sensory processing disorder which accounts for some of her 'Lilly-isms' but were currently looking into ways to try and help her with that.
Last week we saw the cardiologist who said lillys does have a heart murmour but for now it is innocent they could still see too much flow through her valves in the heart but says right now its fine and needs no treatment! phew! so we will monitor that over the coming years.
Yesterday we found out lillys vision is still deteriorating which has totally devaststed me so im praying we soon have enough funds to build lillys sensory room as this will help to stimulate her eyes and maybe help them to improve? or just to slow the deterioration down.
On June the 5th my friend Louise is organising a vw convoy from Barnsley to Skegness for lillys appeal if you are interested the details are here;
Thankyou for reading and if you are on facebook become a fan of Lilly here to get weekly updates on lillys health and development;
or join her appeal group on facebook;
http://www.facebook.com/?sk=messages&tid=1343076249778#!/group.php?gid=32995522737&ref=ts
thankyou all for reading and for your continued support it means so much to us xx